Category: SciComm

My Commitment to my Community in my Community-Based Research

Just over a week ago, I pulled out of a conference that I was meant to be presenting at this week. So, instead of having a jam-packed week full of presentations and research, I spent the time reflecting (and taking some extremely needed downtime). Now that I’ve taken that time, I wanted to reiterate my commitment to my community in my community-based research.

To be clear: My community in this discussion is BTS and ARMY. I can get a lot more detailed on what that means, but suffice to say this means the people in online and offline spaces who identify as OT7 ARMY. (Happy to talk with you more if you’re curious, just setting the stage for this blog.)

Some of this will be repeating this thread on Twitter and also this thread, but wanted to have one place where this was housed that I (and others) could reference. 

Why Me?

I am an academic (I received my PhD in 2018 and now work as a professor) and I study how people use technology in their everyday lives. My expertise is in social platforms and play. What this means is I study games and other social media, but I also keep tabs on other technology. 

I research communities and focus on how people interact with one another, how they make and keep relationships, and how the platforms they use help people support each other.

I also have a focus on disability and disability activism. I am myself disabled and use that as a lens to approach all of my work.

I work in communities I care about. I’ve written about this in other threads, but this work takes a lot of time/energy and very careful planning. I wouldn’t do this if I didn’t deeply care about this community.

As a disabled, neurodivergent scholar, I am very very aware of what it means to be othered and marginalized. With that experience, I try to bring compassion & understanding to everything that I do.

Why Research ARMY?

I have several reasons.

ARMY is amazing and the amount of work that happens in this community has already been noticed by outsiders. I hope to highlight some of this, as well as finding out how we can design technological platforms to better support ARMY activities.

I study play and care, which are both things that ARMY excel at. I want to help other people see and understand that about our community.

People are already researching ARMY, whether members of ARMY like it or not. I would love it if the people doing the research were actually ARMY, so they could better contextualize their findings. Worse are the people (who we’ve mostly seen in the form of journalists, but some researchers as well) who have a bias against ARMY and seek to prove it through their research. I do research to give a different perspective.

People are dismissive or ARMY. We know this. By having published research, I hope that we can have concrete things to point people to when they are like this. I have found with other groups I have done research with, that having the published research is a way to showing legitimacy in the face of critics.

What Now?

I am currently conducting my research in my day-to-day life as an ARMY. What does this mean? I spend a lot of time observing what goes on around me and reflecting on it. I write a lot. Most of my writing goes unread by everyone except me. However, eventually some of my writing ends up in blogs like this one or articles that get reviewed by other researchers. 

Favorite BTS ARMY Moments

In fact, I have a survey open right now for ARMY to take. I am hoping to combine survey results with my own ethnographic work to improve the reach of my research and to help me triangulate some of my findings.

Survey is here: https://tinyurl.com/BangtanSurvey

I am also extremely committed to making sure ARMY also have all the interesting findings from my work. There are actually lots of things I’m learning and seeing that the research community doesn’t even care about (their loss). So I’m releasing those as I have time to put them together. Here’s an example video I made last week during my downtime.

How Do I Ensure ARMY Isn’t Harmed?

I have taken many precautions in my work to make sure that ARMY and BTS are not harmed to the best of my ability. I’m human and I am sure there will be times this isn’t perfect. However, I still do my best. I’m going to end this article by listing some of the things I have done or plan on doing in this regard.

  1. Transparency. Wherever possible I am transparent about what I am doing and how I am doing it.
  2. Care with who I am sharing any data and what they actually have access to. When it comes to tweets, for example, I do not have any direct quotes from ARMY in my published work. I do not include usernames unless I’ve been given very explicit permission (this has only happened once, for a very specific reason, and I didn’t user the full username).
  3. Making sure the community (and in this case BTS) are discussed respectfully and within community norms. (Yes, I have had to fight on this and I will continue pushing back.)
  4. Ensuring the places I am presenting about ARMY are safe for ARMY. This means pulling out of conferences and publications if I need to.
  5. Making sure there is enough context and historical background when discussing anything about communities. 

This blog will be a living document that I will come back to as needed in order to update as I work. I’m constantly iterating on my process and love learning from my community!


More about my research here: https://kateringland.com/btsarmy

‘Mock’ TV Interview

For this week’s blog, I thought I would share my “mock” TV interview that I did through the RSG program at Medill School of Journalism. Over the next couple of blog posts, I plan on distilling some of the lessons I’ve learned about doing interviews and talk about my experiences – both with this TV interview and the podcast.

Sneak preview: you should have at most 3 core ideas or things you want people to remember no matter the kind of conversation or talk you are giving. If someone is at a BBQ tomorrow and telling other people about their conversation with you (or the talk they heard you give or the interview they heard of yours), what do you want them to be able to remember and relay?

Without further ado, here is my very first live-to-tape TV interview!

Xceptional Leaders Podcast: Guest Interview

Recently, I was interviewed for the Xceptional Leaders podcast series. In a follow up blog, I will relate some of my experiences with that recording.

I recently gave an interview to the Xceptional Leaders podcast series. You can listen here or search for it on your podcast app of choice! “Social Research Related to Neurodiverse Gaming with Dr. Kathryn Ringland”


In this podcast I discuss my research with the Autcraft community. If you want to know more, I encourage you to read some of my blog posts!

If you would like to know more and get updates about my new nonprofit, the Kaina Institute for Equitable Research, please bookmark our website: https://www.kainainstitute.org/

Was there something I said in the podcast that got you curious? Please feel free to leave a comment here or tweet @liltove on Twitter or comment on my Facebook page!

A laptop keyboard with the keys reflected on the screen above. The keys are backlit with a green glow.

Video – Disability Day of Mourning: Solace in Online Spaces

CW: violence against people with disabilities

March 1st is the Disability Day of Mourning when we honor those with disabilities who are the victims of filicide.

Across the United States, approximately 12% of people have a disability. People with disabilities are more likely to live in poverty and become the victims of crimes. Every year, people with disabilities are murdered by their parents, family, or caregivers. 650 people with disabilities have lost their lives in this way over the last five years.

On March 1st each year, we hold the Disability Community Day of Mourning to honor and remember those who have been victims of filicide — both adults and children with disabilities who have been murdered by those closest to them.

While vigils are taking place across the globe, memorials are also occurring in online spaces as well. [short video of character in Minecraft to show how it works] In the virtual world of Minecraft, there are communities created specifically to be safe spaces for children and adults with disabilities. One parent in the Autcraft community has created a memorial commemorating the names of those lost to filicide. [a screenshot or two of the memorial]

While communities, like the Autcraft community, do a lot of outreach to educate others about anti-violence and anti-bullying and work to create inclusive spaces, more can be done to help marginalized individuals.

To find out how you can help visit the Autistic Self Advocacy Network website and download the anti-filicide toolkit.

For a list of victims, there is a virtual memorial, which can be found at disability dash memorial dot org.

Video by Kathryn Ringland and Severn Ringland.

Autistic Self Advocacy Network. (2019). 2019 Anti-Filicide Toolkit. Retrieved February 17, 2019, from https://autisticadvocacy.org/projects/community/mourning/anti-filicide/

Sullivan, P. M. (2009). Violence Exposure Among Children with Disabilities. Clinical Child and Family Psychology Review, 12(2), 196–216. https://link.springer.com/article/10.1007/s10567-009-0056-1

Ringland, K. E. (2019). “Autsome”: Fostering an Autistic Identity in an Online Minecraft Community for Youth with Autism. In iConference 2019 Proceedings.

Ringland, K. E. (2019). A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces. In CHI 2019.

Bialik, K. (2017, July 27). 7 facts about Americans with disabilities. Retrieved February 17, 2019, from http://www.pewresearch.org/fact-tank/2017/07/27/7-facts-about-americans-with-disabilities/

Bittersweet” Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 3.0 License http://creativecommons.org/licenses/by/3.0/

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