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Tag: accessibility (Page 1 of 6)
This is a summary of the work presented at SCMS 2022. This is cross-posted on Medium: https://medium.com/p/d8ebbe436fa2
Play happens everywhere and is a universal human experience. However, questions of accessibility still challenge many playful spaces. As diverse as people are, there are a diverse set of needs in order to access an activity, interaction, or experience. We find, though, that disabled individuals are often not accommodated in playful places.
I turn particularly to online playful spaces where some disabled people may find the primary source of their interactions. These online spaces become community places, where people with like-interests congregate, form relationships, and have fun. For playful communities, creating access means both grappling with platform design, including appropriation and modification of technology, and iterating on community norms and expectations to accommodate community members.
In this presentation, using data from ethnographies from two different playful communities, I will explore how the platform and community values are entangled and impact not only the playfulness, but also the accessibility of the space [3,6].
Methods
For both the case studies used in this work, I used ethnographic methods where I was embedded as a participant observer in the community for an extended period of time. In each community, I collected data from my own observations, public social media content, and community produced content. This work is qualitative and while I use some mixed methods, such as surveys, I mostly use that to triangulate what I am already finding in my qualitative work. This means that this work goes very deep into some community spaces and narrows in on specific aspects of my work. In order to preserve the safety of the community members, everything is paraphrased, abstracted, or anonymized as appropriate.
I identify as disabled scholar and activist, which means I approach most of my research with a critical disability lens. I look at spaces through a lens of deconstructing ableism that is occurring there, as well as trying to better understand communities from the perspective of making members feel safe, included, and cared for.
Autcraft
The first ethnography was conducted in a community centered around the video game Minecraft — Autcraft — was founded to create a safe space for autistic youth [5]. The Autcraft community uses various methods including modifying game software, leveraging other social media platforms, and adhering to a strict code of conduct for members to address not only the needs of autistic youth, but to accommodate other access needs [3].
The Autcraft community uses a variety of technological platforms in their community, but it is centered around the video game Minecraft. They use plug-ins and modifications to the software in order to make the game more accessible for the players. There are many different ways the community creates “access” through technological means and many of these technological implementations have been iterated on over time.
The majority of communication in the game world happens via text or through avatar interactions, which are quite simplified compared to some other multiplayer games. This was another intentional choice by the community. If the text in the image above were happening live, it could be moving up the screen fairly quickly. While this is still preferred to other modes of communication, it has its challenges and takes some getting used to.
After learning of a player in the community who was losing their vision, they added a new plug-in to the game in order to make the text chat more accessible. Now the different lines are separated by a symbol of the players choice, such as the dash. Specific titles and the player’s name is also highlighted in different colors. In making this change, the community ended up making text chat more accessible for many of the players.
The reason many people join the Autcraft community is because they had difficulty fitting in, finding friends, or, more broadly speaking, getting access to the play in a Minecraft space. Therefore, for many on Autcraft, being helpful and supportive is one of the most important parts of their sociality. The community has found it important enough to write into their rules and actively encourages this behavior through rewards, such as special titles such as member of the week.
Community describe hanging out with their friends on the Autcraft community much in the same way other youth online have. They spend time with their Autcraft friends online by interacting through forums, instant messaging, and “hanging out” in the Autcraft virtual world. And although not typically physically collocated, these youth on Autcraft consider these relationships to be meaningful friendships.
BTS’s ARMY
The second, ongoing ethnography is being conducted within the ARMY community, the fandom for the Korean musicians, BTS [4]. Much like the Autcraft community, the ARMY community is global. Unlike the Autcraft community, ARMY is a community made of loose-ties and more porous boundaries for community membership [2]. Therefore, how the community engages in play and accommodates access needs of members is notably different from the Autcraft community, as there are no central individuals making decisions about accommodations.
Additionally, because ARMY tends to use public social media platforms, the amount of control they have over the technology is very different from Autcraft. One way the community creates access is by smaller sub-communities using whatever platforms work for them. Smaller groups of ARMY, then, might be found on a modified Discord server or in a group chat. BTS, and the band’s use of various social media platforms, might also dictate what platforms are the most popular among ARMY.
More often, the social infrastructure is altered and iterated upon in order to create access. Specialized accounts to create spaces for disabled or Deaf — or any other subgroup — exist to help foster support and push for more access. For example, as a disabled ARMY, I have been pushing for more alt text to be incorporated in community members’ posts on social media. This also means asking the social media platforms to create more access for users as well.
This sort of activity is important because much of ARMY’s play are fan edits, parody accounts, threads of music and videos, art, and commentary about BTS. In fact, ARMY and BTS often play together, each creating content, communicating via various social media platforms, and share the same goals. The play is very referential, often including layers of inside jokes. For example, there is a plethora of content that explicitly references BTS’s known love for chicken [1].
Like the Autcraft community, ARMY are mindful of social justice issues, especially with regard to access. In both communities, we see how play is both a playful activity, but also an important mechanism for more serious endeavors. This might look like an Autcraft member creating a series of YouTube videos of their game play as an anti-bullying campaign. Or this might be a member of ARMY creating a thread of edited BTS content to highlight the international sign the band used in their Permission to Dance video.
Both communities are also doing the work of correcting misconceptions and pushing back against stigma about themselves. These misconceptions occur because outsiders do not understand the community (often harboring sexism, misogyny, racism, and ableism towards both communities). Particularly, because these are communities of play, they are also often dismissed as ultimately inconsequential by outsiders. This is something both communities would vehemently protest, and do.
Creating Access to Play
Together, these studies show how communities leverage their playful qualities to appropriate and modify the technological and social make-up of the group in order to accommodate a diverse set of community members. From this, we are mostly left with more questions about “play” and “access.” Where is play taking place and can we support ideas of play for the sake of play at the same time play is also being used for more serious business? How is access being created in these various social spaces and what can communities do when they are at the mercy of the technology available to them?
In both communities, we see play being the platform for serious, even life-impacting, interests of community members (e.g., anti-bullying campaigns, grappling with both community-wide and individual trauma). With the advent of the COVID-19 pandemic, these communities became that much more important for its members, as they became the only means of socializing and forming relationships with people outside their homes and places of work. These playful communities were not just a place of leisure or a creative outlet. They are also a place to form meaningful connections with other people.
At the same time, these playful communities are addressing various questions of access. In this talk, I started to illuminate some of the ways communities accommodate disabled community members. The work these communities are doing should be noted because how communities play and what that play is doing for members of communities can be a starting point for understanding these otherwise marginalized groups.
And you can watch a pre-recorded version of the presentation here:
References
1. @bock_twt. 2020. Bantam Seoyeondon: BTS ARMY Shenanigans. In 2020 Rhizome Connect Virtual Conference and Convention. Retrieved September 5, 2021 from https://rhizomeconnect.com/2020/expo-hall/shenanigans/
2. So Yeon Park, Nicole Santero, Blair Kaneshiro, and Jin Ha Lee. 2021. Armed in ARMY: A Case Study of How BTS Fans Successfully Collaborated to #MatchAMillion for Black Lives Matter. CHI 2021: 14.
3. Kathryn E. Ringland. 2019. A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, 1–14. https://doi.org/10.1145/3290605.3300518
4. Kathryn E. Ringland, Arpita Bhattacharya, Kevin Weatherwax, Tessa Eagle, and Christine T. Wolf. 2022. ARMY’s Magic Shop: Understanding the Collaborative Construction of Playful Places in Online Communities. In Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems.
5. Kathryn E. Ringland, Christine T. Wolf, Heather Faucett, Lynn Dombrowski, and Gillian R. Hayes. 2016. “Will I always be not social?”: Re-Conceptualizing Sociality in the Context of a Minecraft Community for Autism. In CHI 2016.
6. Tanya Titchkosky. 2011. The Question of Access: Disability, Space, Meaning. University of Toronto Press, Toronto, Ontario, Canada.
The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces
Preview: Play is an important part of childhood that is often inaccessible for children with disabilities. This work looks at how Autcraft, an online community for autistic children, uses different social media and games platforms to enable access to social play. First, the spaces the Autcraft community uses make the place that is Autcraft possible. Second, these spaces, though some of them are digital, are no more or less “real” than the physical spaces making up a schoolyard or playground.
Importance of Play
Social play is an important part of childhood. It is how children develop and practice their social skills. Children engage in a wide range of playful practice roles and test the boundaries of social rules. These playful interactions are vital not only for children to grow into competent, functioning adults, but also to discover who they are and what kind of adults they want to become.
Disabilities and Access to Play
Disability is created when a person is trying to interact with the world and are not accommodated by their environment. An example of this would be a child who wants to play on a playground, but they cannot roll their wheelchair into the space. Access and disability are inextricably linked. Access, in general, is not a given experience for any single individual. Disability is created in the moment that access is faulty or denied to a person. What this means is that disability is not created within a person.
Because a person’s body and their environment are constantly changing, disability is not happening all the time, but rather, a person is disabled by the context with which they are trying to engage. As disability scholar Tanya Titchkosky states, “While we all have bodies — bodies that we act, sense, feel, or move in and through — only some bodies, only some of the time and only in some places, are understood as disabled ones.” Access, therefore, is dynamic and ever shifting.
For children with disabilities, including autistic children, access to play is often limited or of low quality. One way to help autistic children gain access to play and socialization is through online spaces, such as social media, games, and virtual worlds. This paper extends previous work in this area, by exploring the disabled experience and how that affects access to play.
Access is really only noticeable when it is not available and creates disability. The disabled body becomes the oppressed body, when they are denied access (advertently or inadvertently), not only in a social sense, but also in a literal, physical sense. Children who do not conform to “normal” and “normal play,” then, are not invited to the game. This is done both literally and through the making play objects that a disabled child cannot use.
Among other activities, individuals with disabilities use online spaces to socialize — empowering themselves to do what they may not be able to in the physical world. Online spaces have different ways of creating access from physical spaces. In this ethnographic work, I explore how one community uses the sense of place and the digital experience in Minecraft specifically to give autistic children access to play with their peers. In this sense, they are using Minecraft to mediate their play experience, just like a physical world playground mediates another kind of play experience. One type of mediated experience is not better (or less mediated) than another. Rather, these experiences, from face-to-face to text to avatars on a computer screen, are diverse kinds of experiences. Simply put, playing in Minecraft with friends is still social play, even though it might look different from playing in a physical playground.
For this work, I studied Autcraft. Autcraft is a Minecraft community for children with autism and their allies run by parent volunteers. The goal of the Autcraft community is to have a safe space for children with autism to play Minecraft free from harassment and bullying (for more information visit the Autcraft website). As part of this study, I have been conducting an on-going ethnography within the community (see my paper for details). This study included analysis of activity within the Minecraft server, forums, website, Twitter, Facebook group, YouTube, and Twitch.
The Different “Spaces” of Autcraft
In this work, I found the Autcraft community actively creates access to social play using a variety of social media and other technology. By looking at the entire constellation of social media in the Autcraft ecosystem, we can understand how community members are engaging in a variety of social play experiences.
Access to the Autcraft community happens through three layers of interconnected environments: physical, liminal, and virtual. The physical space includes computer hardware and the environment in which players access the computer. This would be things like a bedroom, home office, or computer lab in the library. The liminal space includes the installation and configuration of the software, as well as user authentication. Finally, the virtual space includes the various social media.
When combined, these spaces allow play to happen because the children have access to play in a context in which they “fit.” When educators, therapists, parents, and researchers privilege face-to-face interactions, they are, in effect, creating disability in children who cannot or will not play in that way. In the Autcraft community, members can recreate the playground in an environment that is more comfortable for them. Community members leverage technology to create a playground where children are most able to play. And, having done this, autistic children engage in social play of which people thought them incapable.
The Autcraft community has used a constellation of platforms to enable social play for autistic children. Here the Autcraft community is using the constellation of technological platforms to help create the sense of place. These platforms cross into physical, liminal, and virtual spaces, working together to create access to play. Here the Autcraft community have leveraged virtual worlds to their advantage — in essence, transforming the disabled play experience into an enabled one.
How someone interacts with others is meaningful, regardless whether that interaction is online or offline. For the autistic children of Autcraft, playing in online spaces is preferable to physical-world, face-to-face interactions. The Autcraft community has defied the conventions set out by many educators, parents, researchers, and therapists by creating a space that privileges digital engagements over physical-world ones. In doing so, they have made a playground that is more comfortable for many autistic children.
Children need a place to play. There are two things to consider: creating a sense of place and allowing for both the real and unreal in these places. Therapists, educators, parents, and researchers tend to privilege the physical realm over all others for mediating sociality. Members of the Autcraft community turn this notion on its head, instead privileging virtual interactions over physical ones. But further still, I have shown how all these spaces — physical, liminal, and virtual — must work together to make play possible. The spaces the Autcraft community uses make the place that is Autcraft possible. These spaces, though some of them are digital, are no more or less “real” than the physical spaces making up a schoolyard or playground. Ultimately, it the sense of place in Autcraft that gives children access to social play.
For more details about my methods and findings, please see my paper that has been accepted to CHI 2019 (to appear in May 2019). I am pleased to announce that this has received Honorable Mention (top 20% of all papers) Full citation and link to the pdf:
Kathryn E. Ringland. 2019. A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces. In CHI 2019. [PDF]
Acknowledgements
I thank the members of Autcraft for the warm welcome to their community. Thank you to Chris Wolf, LouAnne Boyd, and Oliver Haimson and other members of LUCI for their feedback on various iterations of this work. Special thanks to Severn Ringland for his diligent editing and Kyle Lee for insights while writing this up. Shout out to my dissertation committee who helped me shape my thoughts: Gillian Hayes, Tom Boellstorff, Mimi Ito, and Aaron Trammell. I would also like to thank Robert and Barbara Kleist for their support, as well as the ARCS Foundation. This work is supported by the National Institute of Mental Health (T32MH115882). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. This work is covered by human subjects protocol #2014–1079 at the University of California, Irvine.
Preview: Autism is a medical diagnosis that has attracted much attention in recent decades, particularly due to an increase in the numbers of children being diagnosed and the changing requirements for getting the diagnosis. In parallel online communities around autism—both those supporting individuals, families seeking treatment and those supporting embracing the autism identity—have grown. Other work has shown support groups can be useful for those encountering hardship in their lives. In this paper, I illuminate the tension in claiming the autistic identity within this community. The walls of the community work to keep community members safe, but also set them apart from others on the internet. I see that the Autcraft community goes beyond being a support group for victims of targeted violence, to one that redefines and helps community members embrace their own autistic identities.
What is autism and what impact does the label of autism have?
Autism has been the topic of much public concern in recent decades, especially since the sensationalized “autism epidemic” swept through the media. As a medical diagnosis, autism focuses on challenges for individuals; such as whether they are verbal, make eye-contact, or are sensitive to change. Often, as a label, autism is given to youth in order to gain accommodations in school, or for medical treatment. Autistic youth often experience various ways in which this label is used to disempower and disenfranchise them.
This is the case for many youth that are a part of an online community, “Autcraft,” a community centered on a Minecraft virtual world for autistic youth. While those with autism are often the target of harassment and violence in online spaces, the Autcraft community has been actively engaged in making themselves a safe space for youth with autism. Beyond simply keeping bullies out, however, the community has taken the label of “autism” and turned it into something positive—a label worth identifying with.
In the Autcraft community, I have found that the label acts both as a target and as a way for community members to redefine their identities.
Targeting Autism
Concerns over safety of children is an ongoing concern for parents and other caregivers. This is particularly true of those with autistic children, as those with autism tend to be targeted both by their peers and by strangers [32]. Much like other marginalized groups, “autism” is used as a derogatory term. Further, threats of violence can be found across the internet, including in the comments section of YouTube videos, a site used by Autcraft community members. This is especially meaningful as other related work has shown the embodied experience in these online spaces can be as impactful as in physical spaces [29]. Unfortunately, these threats of violence can also result in actual physical harm.
Harassment, threats of violence, and comments about autistic people killing themselves can have a large impact on those targeted, such as additional stress and other psychological harm [22]. The harm, however, does not stop with verbal and written threats. Like other marginalized communities, those with autism face the very real threat of violence against them [14,15].
Here is a video related to these threats of violence in the autistic community at large.
Redefining Autism
There is evidence throughout the
Autcraft community of those who are expressing their autistic identity. Autcraft
community members may be learning to understand and accept themselves or their
child as an autistic individual, but they are also learning to deal with
challenges found outside the Autcraft community where they may not find
themselves accepted and face opposition.
[alt-text for embedded tweet picture: autsome, adjective, Having autism and being extremely impressive or daunting; inspiring great admiration. “My autsome child makes me proud everyday!” synonyms: breathtaking, awe-inspiring, magnificent, wonderful, amazing, stunning, staggering, imposing, stirring, impressive; informal extremely good; excellent. “The band is truly autsome!”]
Adopting “autism” and various forms of the word—as seen in the name of the community “Autcraft”—lends to a sense of identity with others who have the same or similar medical diagnosis. Aside from using “aut” or “autistic” in their user names (i.e., the names that are displayed with their avatars and forum posts, rather than a real-world name), the Autcraft community displays this acceptance through the creation of autism-centric words, such as “autsome.” According to a community post, “autsome” means, “Having autism and being extremely impressive or daunting” and “extremely good; excellent.” Scholars have described how those with disability are often held to a higher standard and those who are “extreme” tend to be held up as inspirational. This type of “inspiration” frames disability as something to be overcome, while achieving difficult objectives. However, I argue that having language such as “autsome” is meant to be inspirational not for others looking in to the Autcraft community, but for the autistic children who are otherwise dealing with a barrage of negative language about autism. This reframes autism as an identity that is worth embracing, rather than overcoming.
Autcraft community members actively work to reshape the mainstream dialog about autism. First and foremost, members try to lead by example, following a set of tenets set out by community founders that encourage and promote good behavior. Community members also engage in outreach to both educate others and to make their own expressions of their autistic identities more visible to others. Members of the Autcraft community engage in activities—much like creating memorials for victims of violence—that purposefully shed light on the hardships they have faced. These efforts are examples of how those with marginalized identities fight back against oppression. As scholars, by listening to these community members and understanding their activities, we can begin to elevate the voices of those who have long been silenced.
For more details about our methods and findings, please see my paper that has been accepted to iConference 2019 (to appear in April 2019). Full citation and link to the pdf below:
Kathryn E. Ringland. 2019. “Autsome”: Fostering an Autistic Identity in an Online Minecraft Community for Youth with Autism. In iConference 2019 Proceedings. [PDF]
Acknowledgements: I thank the members of Autcraft for the warm welcome to their community. Thank you to members of LUCI for their feedback and special thanks to Severn Ringland for his diligent editing. I would also like to thank Robert and Barbara Kleist for their support, as well as the ARCS Foundation. This work is covered by human subjects protocol #2014-1079 at the University of California, Irvine. This work is supported by the National Institute of Mental Health (T32MH115882). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.
I’m happy to report my paper, “A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces” has been accepted to be presented at CHI 2019 in Glasgow, UK. Below is a link to the PDF. Stay tuned for a blog about this article.
Kathryn E. Ringland. 2019. A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces. In CHI 2019.
Read more about this work here:
Kathryn E. Ringland, LouAnne Boyd, Heather Faucett, Amanda L.L. Cullen, Gillian R. Hayes. Making in Minecraft: A Means of Self-Expression for Youth with Autism. In IDC 2017. [PDF]
Kathryn E. Ringland, Christine T. Wolf, LouAnne E. Boyd, Mark Baldwin, and Gillian R. Hayes. 2016. Would You Be Mine: Appropriating Minecraft as an Assistive Technology for Youth with Autism. In ASSETS 2016. [PDF]
Ringland, K.E., Wolf, C.T., Faucett, H., Dombrowski, L., and Hayes, G.R. “’Will I always not be social?’: Re-Conceptualizing Sociality in the Context of a Minecraft Community for Autism”. Proceedings of the 2016 ACM CHI Conference on Human Factors in Computing Systems, ACM (2016). [Acceptance Rate: 23.4%] [PDF]
In exciting news, Stuart Duncan’s TEDx Talk, How I used Minecraft to help kids with autism, is now featured on the ted.com front page! Check it out (and spot our research being highlighted)!!
As part of my dissertation work, I have been going through all of my old screen shots and analyzing all my collected data. I decided to launch a photo blog to bring to life some of my findings and make them available to all the wonderful people who have helped me with my research. I’ll be posting new blogs every week until I am through all of my screen shots. I would love feedback and comments.
You can visit the photo blog here: https://virtuallyneurodiverse.com
A downloadable PDF version of this statement can be found here.
I have taught in a variety of roles: Faculty Lecturer, Teaching Assistant (TA), and mentor of both undergraduates and graduate students. As Faculty Lecturer for a new course, Introduction to Assistive Technology, I developed the syllabus and course content. I created a class that focused on my teaching goals and ensured that my students would be learning skills and gaining knowledge critical for their future careers. Through these experiences, I have honed my own teaching philosophy and have adjusted to meet the needs of large and small classroom settings. I believe effective teaching is achieved by three fundamentals; reflection, adaptability, and accessibility (See Figure 1). I think these mechanisms all work in combination to produce dynamic and impactful learning interactions.
Figure 1. Reflection, adaptability, and accessibility working together for effective teaching.
Reflection
As an instructor, I frequently challenge my classes with open-ended questions about course material, which motivates students to reflect on their own life experiences. This practice helps students connect with the material and deepen their learning in the classroom. For example, when discussing learning aids in my Introduction to Assistive Technology course, I asked students to consider learning tools they had used throughout their education. This conversation led students to transform and broaden their understanding of who uses learning supports. I also asked my students to bring in news articles related to course material at the beginning of each week. The students would contextualize the subject of the class into their everyday lives. These weekly reflections became a way for students to connect themes from week to week. In course evaluations, students have noted the “stimulating discussions” lead to “lots of student engagement.” Finally, as an instructor and mentor, I am constantly evaluating the effectiveness of my teaching through frequent student feedback. Through both formal and informal mechanisms, I can respond quickly to class dynamics.
Adaptability
A common hindrance to students is when a teacher has a preconceived mindset of their learning styles and abilities. I have observed when this type of rigidity has led to disrupted learning experiences. In one case, I was a teaching assistant in a large lecture where laptops were banned. This resulted in students attempting to circumvent rules and an unnecessary focus on policing them. More importantly, students with disabilities were outed and obstructed from learning. In designing my own classroom, this kind of rule goes against my philosophy of removing learning obstacles and supporting student needs. I kept these goals in mind when I was hired at Chapman University to design and teach the first Introduction to Assistive Technology class. Using the flexibility of creating my own curriculum, my syllabus focused on disability advocacy and inclusion. Listening to previous student feedback I altered my courses to allow the use of laptops and even incorporated their use during class discussions – having students search for ideas to share. From this experience, I learned that being open to changing the rules can have unforeseen outcomes: happier, more engaged students and greater access to learning for everyone.
Accessibility
I have worked to create an accessible, interactive learning space in both my classroom and laboratory. While in-class conversation is good and can be conducive to student learning, I understand that some students are unable to participate in this way. Instead of penalizing students for being afraid or unable to speak up in large classroom discussions, I offer alternative avenues for participation such as email, online forums, and smaller discussion groups. While helping the students find alternative means of communicating in the classroom, this also helps manage larger, growing class sizes. Inclusion also means allowing for a diversity of thought both in learning styles and in how to solve problems, including using multiple methods to evaluate student learning. I also bring in additional voices as guest lecturers to expose my students to new viewpoints. For example, in my Assistive Technology course, I invited a woman of color who also has a disability to share her own experiences. In my course evaluations, one of the most meaningful comments I received was, “You were so accepting and kind to me, I knew you cared about me and my disabilities. Thank you.” This is the support I would like all my students to feel when they attend my classes.
Future Direction & Example Courses
My experiences as an instructor and mentor have prepared me to teach both large and small college course settings. In reflecting on my own work as an instructor, I believe in adjusting to the needs of the students and creating an environment that works for the dynamics of the group. I would like to continue advancing my knowledge of pedagogy by taking more courses and workshops.
With my background in both technology and social sciences, I am prepared to teach a variety of courses. In future, Computer Supported Cooperative Work, Research Methods, Gender and Information Technology, and Technical Foundations. I am also prepared to teach new courses such as Computer Games & Society and Introduction to Assistive Technology.
A downloadable PDF version of this article is available here.
The ability to access social interactions is important for everyone, but many people may often be denied access or experience reduced access because of physical, cognitive, or social barriers. A lack of quality access leads to impoverished social experiences and a host of other problems such as loneliness, depression, and anxiety. My research agenda aims to understand how we can design and develop technology to support social interactions – exploring how sociality crosses into both physical and virtual spaces. For physical environments, I have designed and developed assistive technology as a therapeutic tool using whole-body interactive systems to expand modes of communication. Beyond physical spaces, my dissertation focuses on social interactions within and across social media platforms, including a Minecraft virtual world for children with autism, through ethnographic methods. In my future research, I will explore how individuals navigate access not only from platform to platform, but also from the physical world to the virtual and back again. Insight from this work will lead to theoretical and practical contributions of how individuals with disabilities and their social networks adopt, use, and modify technical systems that facilitate social interactions. Further, my work will lead to a better understanding of these communities and how to design more inclusive technology.
Assistive Technology for Children with Autism
Whole-Body Interactive Systems
Figure A. Strawberry outline colored by the user.
Figure B. A target with the silhouette of the user in the background.
Access to otherwise prohibitively expensive (e.g., money, time, energy) therapy is made possible by using whole-body interactive technology and augmenting the therapeutic and home environments for users. I conducted research of two systems using whole-body interactions – SensoryPaint and DanceCraft – which augmented therapies already being employed by children with autism. Both systems were developed using the Kinect, an inexpensive device that can be placed in a user’s home or doctor’s office. These projects allow for a more inclusive therapeutic environment by creating accessible, inexpensive solutions.
SensoryPaint uses a projection on a wall that the users interacted with using rubber balls. The user receives visual feedback of their activity via a silhouette displayed on the projection. The system allows for multiple types of interaction. For example, the user can digitally “paint” with the Kinect, tracking the ball and displaying the ball’s path in various colors on the wall (See Figure A). The user can also throw the ball at the projection to get a “splash” effect (See Figure B). From the results of the pilot study of SensoryPaint, I found that whole-body interactions can be more engaging for children than traditional therapies by giving participants different interactive options that suit their specific sensory needs. Including a flexible interface allows both therapists and children to use relevant segments of the program and change settings as needed. I presented these results at the Conference on Pervasive and Ubiquitous Computing (UbiComp) where I was nominated for a Best Paper award [8].
Figure C. Shadow puppet interface of DanceCraft.
Following the SensoryPaint study, I led a team of undergraduates to design and develop the DanceCraft system. The interface uses a similar silhouette feature that gives the user visual feedback on their activity. The user follows along with pre-recorded dances displayed as a “paper doll” figure (See Figure C). By including a feature to replay recorded dances on-the-fly, therapists and instructors can record dances specific for each child and session. The replay feature also allows for children to watch their own dance choreographies, giving them instant feedback. A therapist can then track a child’s progress across sessions through their saved recordings. Future iterations of the DanceCraft software will calculate whether the user’s captured dance moves are the correct dance moves as prescribed by the therapist. A pilot study of DanceCraft showed the feasibility of augmenting therapy in the home. I coauthored these preliminary findings, which were presented at the ACM Tapia Diversity conference [1], and a manuscript for the Transactions of Computer-Human Interaction (TOCHI) journal is currently in progress. Future work on these whole-body interactive systems will focus on creating intelligent software that can adapt to a growing, developing child’s needs and be intuitive for parents and therapists.
3D Printing from User-created Models in the Minecraft Virtual World
Minecraft is a popular virtual “sandbox” – with currently over 27 million units of the software sold – where players can build and create objects, environments, and worlds with a high degree of freedom. The multiplayer-capabilities of virtual worlds in Minecraft make it an ideal system for examining how technology facilitates and drives social interactions between users. I designed and programmed software that allows players to 3D print models of objects they have created within Minecraft. The application takes the coordinates of an object and translates it into a file that can be sent to a 3D printer, making their creations come to life in a sense. I designed the software to leverage the familiar interface by creating it as an add-on for Minecraft. To use the program, the user creates the 3D printing “magic wand” object within the virtual world, types in commands for the wand in the Minecraft interface, and then saves the files to the local computer. This program has potential in establishing engaging social interactions with greater accessibility due to the inherent nature of virtual environments, where conditions such as geographical or physical limitations are less hindering. Future work in this project will explore how users experience blending virtual creation of 3D objects with their tangible, physical representations. As part of a campus-wide effort to retain underrepresented students in STEM, this work was presented by my undergraduate mentee at the UCI Summer Research Symposium [9].
Exploring Virtual Worlds as a Support for Social Play in Children with Disabilities
Autcraft is a specific iteration of a Minecraft virtual world dedicated to children with autism and their allies. Drawing from work in Disability Studies, my dissertation examines data collected from ethnographic research conducted over three years in Autcraft (See Figure D). My research has uncovered how the Autcraft community works to create a safe, inclusive space through both social and technical means [6]. Parents actively work to maintain safety and accessibility in the Autcraft community through modifying Minecraft and other mainstream technology to create assistive devices [5]. Additionally, the findings from this work indicate the importance of a supportive communication framework (e.g., Facebook, Twitter, YouTube, and Twitch) that has emerged in the Autcraft community [7]. This constellation of social media is comprised of different platforms used in tandem to create a social, community experience. Community members can thereby empower themselves through online activism that supports better treatment of individuals with disability [2]. This also gives the children an outlet to express themselves creatively on safe online platforms [4]. Ultimately, I found the community searches for, practices, and defines sociality through the various communication channels and means of communication indicating evolving definitions of what it means to be social [3,7]. Results from this research project have appeared in multiple venues, including Human Factors in Computing Systems (CHI) and Computer Supported Cooperative Work and Social Computing (CSCW).
Figure D. A screen shot of my avatar, ResearcherKate – used to complete my virtual world ethnography.
Contributions of Dissertation
My dissertation contributes an empirical understanding of how access is granted to some individuals and not to others, creating an uneven distribution of experiences when interacting with technologies. This includes an exploration of how the intersectionality of multiple identities of community members, such as autistic or child, impacts social play online and how social play enables the performance of these identities. Insight from my work can help shape our scholarly understanding of how users approach technology, as well as some of the work marginalized users do to fully experience interactions. This includes some of the “Do-It-Yourself” activities individuals engage in to make systems more usable for themselves and their communities.
In this work, I highlight the value of virtual social interactions for marginalized users. When scholars, designers, therapists, or parents privilege physical, face-to-face social interactions over virtual ones, they run the risk of making invisible those who prefer, or have better access to, virtual social interactions. My dissertation challenges the mainstream discourse and contributes to normalizing social play as it occurs in virtual spaces for children with autism. Often, society tells these children they should focus solely on their physical-world engagements, while their online relationships and experiences are discounted. Children with autism are just one example of a subset of people who may prefer virtual interactions.
Finally, my work contributes a new way for HCI researchers to define and study social media. This work expands the definition of social media to include games and virtual worlds, beyond the scope of other social media platforms such as Facebook, Twitter, and Tumblr. The ethnographic methods used in this project also exemplify how HCI researchers should look beyond the bounds of a single social platform to understand a user or a community of users. Social media platforms work together to create an organic network for social interaction. This holistic lens of research allows for a far more complete understanding of users, which is necessary to create access and inclusion.
Research Agenda
My future research program will continue to explore the frontier where physical and virtual interactions no longer simply coexist, but are seamless. My work will encompass the following three themes: 1) understanding how people use a constellation of social platforms, 2) understanding disabled embodied experiences as mediated by technology, and 3) using the lens of intersectionality to represent a more complete person regardless of ability. To explore these threads, my research lab will engage in community-based work with individuals with disability and relevant organizations. Together we will answer questions regarding how we can design and develop sustainable technology that mediates social interactions and how access to these social interactions will improve quality of life. Research activities will include: designing and developing software for virtual reality (VR) and augmented reality (AR) platforms in tandem with whole-body sensors; holding workshops with marginalized individuals to both help with the design of these systems and to test the efficacy of the systems; and outreach programs with students in the department with local groups and schools.
This research will not only further the field in terms of understanding how people can build innovative technology, but also aid in the academic STEM pipeline for underrepresented students. As with my previous work, I will continue to mentor graduate and undergraduate students who are interested in working with marginalized populations in the areas of technology, games, and media studies. Results from this work will be published in conferences and journals geared towards HCI (such as CHI, Ubicomp, and ASSETS). My goal is to produce scientific results from multiple, diverse perspectives that will ensure a broader impact.
References
[1] J.K. Brown, K.E. Ringland, and G.R. Hayes. 2016. DanceCraft: A Whole-Body Dance Software for Children with Autism. Tapia Celebration of Diversity in Computing 2016.
[2] K.E. Ringland. 2017. On Being “Autsome”: An Exploration of Online Social Play as a Means of Empowering Autistic Youth. Popular Culture Association / American Culture Association.
[3] K.E. Ringland. 2017. Minecraft as a Site of Sociality for Autistic Youth. QGCon 2017.
[4] K.E. Ringland, L.E. Boyd, H. Faucett, A.L.L. Cullen, and Gillian R. Hayes. 2017. Making in Minecraft: A Means of Self-Expression for Youth with Autism. In Proc. IDC 2017, ACM.
[5] K.E. Ringland, C.T. Wolf, L.E. Boyd, M. Baldwin, and G.R. Hayes. 2016. Would You Be Mine: Appropriating Minecraft as an Assistive Technology for Youth with Autism. In Proc. ASSETS 2016, ACM.
[6] K.E. Ringland, C.T. Wolf, L. Dombrowski, and G.R. Hayes. 2015. Making “Safe”: Community-Centered Practices in a Virtual World Dedicated to Children with Autism. In Proc. CSCW 2015, ACM.
[7] K.E. Ringland, C.T. Wolf, H. Faucett, L. Dombrowski, and G.R. Hayes. 2016. “Will I always be not social?”: Re-Conceptualizing Sociality in the Context of a Minecraft Community for Autism. In Proc. CHI 2016.
[8] K.E. Ringland, R. Zalapa, M. Neal, L. Escobedo, M. Tentori, and G.R. Hayes. 2014. SensoryPaint: A Multimodal Sensory Intervention for Children with Neurodevelopmental Disorders. In Proc. UbiComp, ACM.
[9] Tamimi, A., Ringland, K.E., Hayes, G.R. 2016. “Developing a User-Friendly System to 3D Print Minecraft Creations.” UCI Summer Research Colloquium. Irvine, CA.
